Ehlers Danlos Syndrome (EDS) Specialist
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Alpenglow Pain & Wellness
Board Certified Interventional Pain Management Physicians & Board Certified Anesthesiologists located in Anchorage, AK
Dr. Nichelle C. Renk and Dr. Mary Beth Calor have extensive experience treating the inherited connective tissue disorder, hypermobile Ehlers Danlos Syndrome (EDS). As the only EDS providers in Alaska, they provide successful treatments to relieve the associated chronic musculoskeletal pain and strengthen muscles and bones. From physical therapy to supplements and nutritional counseling, our providers offer an array of solutions at our office in Anchorage, Alaska, to help you take control of your health and manage this condition. Call to book your appointment.
Ehlers Danlos Syndrome (EDS) Hypermobile Type Q & A
What is Ehlers-Danlos Syndrome?
Ehlers-Danlos Syndrome (EDS) is a cluster of disorders that affect your connective tissues, mainly the joints, blood vessel walls, and skin. Proteins and other substances make up your connective tissue and are primarily responsible for the elasticity and strength of your internal bodily structures.
The overly flexible joints and stretchy, fragile skin involved with EDS can be problematic, for example, if a wound requires stitches, your skin might not be sufficiently strong to hold the stitches.
View the EDS Medical Professional's Directory here.
What is hypermobile Ehlers-Danlos Syndrome?
Hypermobile EDS is the least severe type of this syndrome, causes defects in the collagen protein, and is common in adolescents. Many adolescents with this condition also experience chronic musculoskeletal pain.
The cause of hypermobile EDS is unclear, but other types of EDS are associated with a variety of genetic causes, many of which are hereditary. If you have one of the most common types of this syndrome, there’s a 50% chance of passing the gene on to your children.
What are the complications of hypermobile EDS?
The characteristic overly flexible joints can lead to early-onset arthritis and joint dislocations. Fragile skin can also develop noticeable scarring.
Many men, women, and children with hypermobile EDS also have or develop other health complications and symptoms, such as:
- Osteoporosis and degenerative joint disease
- Chronic fatigue
- Easy bruising
- Functional bowel disorders
- Depression
You may experience cardiovascular abnormalities, such as autonomic dysfunction
and mitral valve prolapse.
Dr. Renk typically obtains a diagnosis of hypermobile EDS with a physical exam and medical and family history review. There’s no genetic test available for the hypermobile EDS.
What are the treatments for Hypermobile EDS?
Dr. Renk provides a range of effective treatments for hypermobile EDS that includes physical therapy to strengthen muscles and improve joint stability and the following:
- Assistive devices, such as braces
- Lifestyle modifications
- Vitamins and supplements
- Pain psychology
- Limited use of medications
- Physical therapy
Dr. Renk is the only EDS provider in the state of Alaska and can help you or a loved one to manage the pain and improve daily life.
To find out more about hypermobile EDS and the available treatments, call the office to book your personal consultation.